ALD Advocacy
Giving Boys A Chance to Fight
Conner’s Crusade is dedicated to raising awareness, advocating for newborn screening, supporting rare disease research, and equity of access to treatment for ALD, leukodystrophies, and other rare diseases.
Our son had the chance to fight. We want all ALD boys, boys with other leukodystrophies, and children of other rare conditions also to have the chance to fight and to achieve their best possible outcome.
In the News
Every child with a rare disease that has a suitable treatment available deserves the chance to fight!
Advocacy
Advocacy to raise awareness, increase newborn screening, support research, and ensure equity of access to treatment.
Resources
Library of links to advocacy and treatment resources for ALD and other rare diseases in Canada and the U.S.
Honouring Their Stories
We’re keeping their memory alive by sharing stories of the children lost to ALD and other rare diseases.