Conner's Crusade
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Advocacy & Treatment Resources

Advocacy Organizations

Alex TLC icon

Alex TLC (United Kingdom)

ALD Alliance

ALD Alliance

Remember the girls

ALD Hope

The Calliope foundation

Calliope Joy Foundation

NORD

Fight ALD

Fundacion Lantauro

Fundación Lautaro te Necesita

Hunters Hope

Hunter’s Hope

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Krabbe Connect - Connecting Patients and Research

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Leukodystrophy Newborn Screening Action Network

Leukodystrophy Research and Resource

Leukodystrophy Research & Resource Organization (Australian & Eurasia)

MLD Foundation

MLD Foundation

Remember the Girls

Stop ALD

United Leukodystrophy

United Leukodystrophy Foundation

Monitoring & Treatment

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ALD Alliance – A Parent’s Guide to Newborn Screening

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ALD Alliance – Preparing for Cerebral Treatment

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International Consensus Guidelines

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Clinical Trials

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Adrenoleukodystrophy: Guidance for Adrenal Surveillance in Males Identified by Newborn Screen

Gene Therapy

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Bluebird Bio

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Living with ALD - Patient Stories

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Remembering & Honouring Their Stories

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The information and content of this website are NOT intended to be a substitute for medical advice, diagnosis, or treatment. The advice of a physician, specialist, or other qualified healthcare provider should be sought with any question regarding a medical condition or treatment. Professional medical advice should not be disregarded because of anything you have read on this website.

Disclaimer of Liability
The material and information contained on this website are for support, advocacy, and general informational purposes only. You should not rely on the material or information on this website as the basis for making any business, legal, medical, or other decisions. Whilst we endeavor to keep the information up to date and correct, Conner’s Crusade makes no representations or warranties, express or implied, about the completeness, accuracy, reliability, or suitability with respect to content. Any reliance you place on such information is strictly at your own risk.

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