Joey is a larger-than-life seven-year-old boy coming up on the first anniversary of his bone marrow transplant. In July 2021, Joey became unresponsive at a local hospital and was transferred to the University Of Maryland pediatric ICU. He was diagnosed with adrenal insufficiency and was hospitalized for five days. In the weeks to follow, he was diagnosed with ALD by his endocrinologist. Joey ...

Aaron McMillan was diagnosed with adrenal insufficiency at age 5. His 5-year vaccines mixed with the flu shot sent him into his first major adrenal crisis and to the hospital. Prior to diagnosis he had undiagnosed high fevers and a Mediterranean tan. It took three more months before he was also diagnosed with ALD. Aaron’s fight started that day in November, seven years ago.  Luckily, he ...

William Downes was diagnosed with childhood cerebral adrenoleukodystrophy in September of 2017. Family and friends have described Will as a vibrant, intelligent, loving, and kind-hearted boy who loves football and Manchester United. Will was diagnosed too late for transplant and has fought ALD valiantly for over six years with his devoted parents Emma and Chris and his loving sister Ella ...

Ken is a wonderful ambassador for the ALD Community and an amazing resource for other patients who face the adult onset form called Adrenomyeloneuropathy or AMN. "Hi! My name is Ken and I was diagnosed with AMN when I was 31 years old. Having a brother and uncle both diagnosed with the gene defect, I was vaguely familiar with it. I knew it could be deadly as I had lost that uncle at age ...

Kynan is a beautiful, vibrant young boy who was diagnosed with childhood cerebral adrenoleukodystrophy at the age of eight on June 29th, 2022. His mother received a call after his MRI and was told bluntly that he had one to two years to live and that she should make memories with him. Throughout his childhood, Kynan struggled with frequent illness, often requiring hospital admission and ...