I was diagnosed with adrenomyeloneuropathy nine years ago, at the age of 29. Although I have a very extensive family history with every phenotype of ALD/AMN, my diagnosis took a long time since no newborn screening existed in 1986. My earliest symptoms began manifesting themselves in my late teens and early twenties, starting with balance issues and spasticity. I experience virtually all of the classic symptoms of AMN, including mobility issues, leg spasms, bladder and bowel issues, fatigue, adrenal insufficiency, and neuropathic pain. In my case, the neuropathic pain in my feet and legs is severe and one of the hardest symptoms to live with. Even though I receive annual brain MRIs and try to manage my symptoms as best as I can, I still live with the fear of developing adult cerebral adrenoleukodystrophy. For now, my life is occupied by caring for my two young children and my wife of over ten years. I also love to engage in adaptive sports and recreation, especially wheelchair basketball and handcycling. I am so grateful for the broad ALD/AMN community and always relish the opportunity to build connections with others. The work that is being done right now to advocate for newborn screening is vital, and I know that it would have improved my life substantially for many years prior to my diagnosis.